Parent to Parent

When a child is first diagnosed with AS, it is natural for the parents to be overwhelmed with the news.  You are not only interested in acquiring specific information about AS, but also may need emotional support to help you through the difficulty of adjusting to the knowledge that your child may never be normal.  This adjustment period may last a number of years.  Various events and family situations throughout the life of your AS child can also create a need for emotional support.  

Sometimes it is helpful to discuss your thoughts and feelings with others that have had the same experiences. We have a number of parents within our group, with AS children of varying ages and abilities,  who are willing to be contacted by other AS families.  In addition,  three PNWASF directors have been specifically trained to talk to AS families who are in need of emotional support.  We encourage you to contact them.  They took time the time to attend the training because they wanted to help you - your call will not be an intrusion to them.  Contact PNWASF at the phone number below or e-mail us and we will put you in touch with them. If you would like, contact the AS families in you state. All you have to do is open the pages below for each state listed in our region. Families are within each directory who may be be contacted for emotional and educational support on AS.

> Oregon AS Families
> Alaska AS Families
> Washington AS Families

We are looking to update our parent to parent directory so if you would like to be included please send us your information to pnwasf@pnwasf.org.  The information that we would like includes your name, city you live in, contact information ( phone number, email), name of your child/children with AS, their date of birth and classification if known (example: deletion positive, clinical, UPD, etc.)