var s = new Array();

s[0] = "Pacific NW Angelman Syndrome Foundation^http://www.pnwasf.org/^TODAY IS: SEARCH: Welcome! Pacific Northwest Angelman Syndrome Foundation was formed in 1994 for the purposes of increasing ...^TODAY IS: SEARCH: Welcome! Pacific Northwest Angelman Syndrome Foundation was formed in 1994 for the purposes of increasing public awareness of Angelman Syndrome (AS) and serving as a resource and source of support for individuals with AS and their families in the states of Washington, Oregon and Alaska. The organization is comprised of elected officers and directors, who serve on a strictly volunteer basis, and the membership is open to interested individuals, families and professionals. PNWASF is associated with the national United States organization, Angelman Syndrome Foundation (ASF) and has contacts with various other international AS organizations. copyright 2006. all rights reserved.^0^0^";
s[1] = "Pacific NW Angelman Syndrome Foundation^http://www.pnwasf.org/html/syndrome.htm^TODAY IS: SEARCH: Angelman Syndrome What is Angelman Syndrome? Angelman Syndrome (AS) is a genetic disorder first described ...^TODAY IS: SEARCH: Angelman Syndrome What is Angelman Syndrome? Angelman Syndrome (AS) is a genetic disorder first described in 1965 by Dr. Harry Angleman. The rural English physician who discovered Angelman Syndrome. Some common characteristics of AS are:An unstable, jerky gait Unusually happy demeanor Variable developmental delay, usually severe by traditional testing methods Lack of speech or few words. Receptive language skills may be much higher than expressive language skills Small head size Seizure disorders Other features often noted include sleep disturbances, flatten back of the head, excessive drooling, chewing and other oral behaviors, hyperactivity, light skin, eyes and hair colors when compared to other family members and feeding problems in infancy. copyright 2006. all rights reserved.^0^0^";
s[2] = "Pacific NW Angelman Syndrome Foundation^http://www.pnwasf.org/html/who.htm^TODAY IS: SEARCH: Who We Are WHAT SERVICES DOES PNWASF PROVIDE? PNWASF LITERATURE PNWASF hosted the national 1997 ASF ...^TODAY IS: SEARCH: Who We Are WHAT SERVICES DOES PNWASF PROVIDE? PNWASF LITERATURE PNWASF hosted the national 1997 ASF conference in Seattle and contributed to the 1999 ASF conference in Philadelphia. As a result, we have compiled literature from these conferences. Contact us and we will send the literature free of charge. In addition, several of our families monitor the AS listserv where families around the world discuss the many aspects of AS. The listserv is a source of some of the most current information about common characteristics and behaviors of AS individuals, solutions to specific problems, opinions about certain interventions and current areas of research. We will gladly share this information with you. Further, PNWASF publishes a quarterly newsletter for our members. We discuss activities, new information on AS, and "Angel of the Quarter". Our Newsletter editor is Bob DeCamp. He took over after many great editions of work from Crystal Harrison. Thanks for all the work, Crystal. Just click to see our newsletter. Additional information available is as follows: PNWASF Trifold ACTIVITIES Picnics Every summer, PNWASF tries to organize a picnic in the Seattle and Portland areas. If there is interest, and a willingness to help organize picnics in other areas, such as Alaska, Eastern Washington or Eastern Oregon, please contact us, as PNWASF would like to help support these functions. Picnics provide an excellent opportunity for all AS family members and friends to get together, exchange information, develop bonds and observe individuals with AS of varying ages. Adult Retreat Every year, PNWASF hosts an adult retreat. The annual PNWASF Business Meeting is conducted during this time, including the election of board members. The adult-only format allows the parents the opportunity to discuss their children with AS at length, while also enjoying a relaxing get-away from every day concerns. The last couple of years, the retreat has been held at a Bed & Breakfast, allowing the families the privacy of individual rooms but a central place to interact and get to know the other families. PNWASF subsidizes the stay at the B&B. Pacific NW Angelman Syndrome Annual Camp Every other year, PNWASF is a guest at Camp Prime Time on White Pass, Washington. Camp Prime Time is a non-profit organization which provides the facilities and meals to disability groups. Camp Prime Time has comfortable cabins, electricity, shower and bathing facilities and a lodge and campfire site for group gatherings. The camp area is wheelchair accessible. The alternating years, the last four years, the camp has been held in Vaughn, Washington, at the Easter Seals Camp. Meals are provided, with comfortable cabins, electricity, bathing facilities and a lodge. The facility is located on a bay with a firepit and a swimming pool with a lifeguard is on site. Both facility have been excellent in their treatment of our organization, our families, and our AS kids. We highly recommend both facilities. Information Booths at Disability Fairs and Conferences The last several years, PNWASF has maintained a booth at the Infant and Early Childhood Conference held annually in late April to early May. This year it will be held in Bellevue, Washington on April 28th through the 30th. We will have a booth on site on the 29th and 30th. For more information go to http://www.ieccwa.org. Including this year, PNWASF has maintained a booth for two years at the Puyallup School District Special Education Parent Advisory Committee (SEPAC)Resource Fair. This year it will be in the evening at 6:30 P.M. of March 11, 2004. It will be conducted for two hours. The location will be at Governor John R. Rogers High School, 12801 86th Avenue East, Puyallup, Washington. Free childcare and recreational activities for youths will be available. For more information, contact the Puyallup School District Administration at 253-841-1301. OTHER AFFILIATIONS: PNWASF has received benefits from working with the following organizations: Washington PAVE (Parents Are Vital in Education)The ARC of Washington StateStarlight FoundationCHDD (Center on Human Development and Disability), Univ. of WashingtonUniversity of Oregon Disability Services Final Note: All of our work is done by parents and other family members who work for free and put out great effort to help the organization and to raise their children, including those with AS. It isn't easy and I am amazed at the volunteers each project receives. Thank you all for your great effort and work through the years. copyright 2006. all rights reserved.^0^0^";
s[3] = "Pacific NW Angelman Syndrome Foundation^http://www.pnwasf.org/html/activities.htm^TODAY IS: SEARCH: Current Activities PNWASF ANNUAL MEETING AND PARENT RETREAT Our Annual Meeting will be held at the ...^TODAY IS: SEARCH: Current Activities PNWASF ANNUAL MEETING AND PARENT RETREAT Our Annual Meeting will be held at the Quinault Casino and Resort. The event is scheduled for March 4, 5, and 6. This resort is located on the Olympic Peninsula on the Pacific Ocean. $75 is the suggested donation to PNWASF. If you are financially unable to provide this, the organization can work with you. For questions, contact David Platts or Sherri Rein. David Platts can be reached at 253-639-1643. Sherri can be e-mailed at reinfour@aol.com. RESULTS OF THE PNWASF ANNUAL MEETING AND RETREAT The Casino provided an excellent retreat for the parents to play and work on business. The ASF National Conference will be held from June 29 to July 2, 2005. The event will be held in Anaheim, California. This event will be an good opportunity to learn about AS and the effects on those people afflicted with this genetic disability and the families who are affected. PNWASF approved scholarships not to exceed $7,500 to be provided to families who would like to attend the event but are in financial need. A committee has been set up to review the applications and to submit final approval to the board. Second, PNWASF will provide a mailing to pediatricians and neurologists is Oregon, Alaska, and Washington. Jennifer Cyrus, a new board member from Albany, Oregon, is in charge of this project. Note: a decision was made to provide medical mailings to all physicians in Alaska. Only, 250 pediatricians are in Alaska and all are in metropolitan areas. Jennifer thought it would be wise to inform all physicians in Alaska, due to remote nature of much of the state. A second new board member was elected. Gloria DeRosa is from Port Orchard, Washington. Like Jennifer, she is on our Parent to Parent contact list for new members, parents who have a recently diagnosed child, or availability for AS families who needs "an ear" to listen. We are very pleased to accept our two new board members and, with their addition, we now have eight board members in PNWASF! Here is picture of the families in attendance at the Annual Meeting and Retreat:Angelman Syndrome parents and PNWASF Adult Meeting and Retreat PNWASF A fun-filled camp experience for all AS families will be held on August 19th through August 21st, 2005 at the Easter Seals Camp in Vaughn, Washington. The address is 17809 S. Vaughn Road, KPN, Vaughn, WA 98394. Angels, siblings, parents, caregivers and friends are welcome to camp, swim (there is an indoor pool), hike, boat, fish, and play games. Arrival time is anytime after 3 p.m. on Friday and departure time is by 1 p.m. on Sunday. A $25 nonrefundable deposit is all you will need to pay to attend the whole weekend. Scholarships are available for families who are unable to pay the deposit. Cabins are provided for each family (be sure to bring you own sleeping bags, pillows and blankets). All meals are provided. Space is available on a first-come, first-serve basis. Send you $25 nonrefundable deposit (make checks payable to PNWASF) to Corbin Thompson, 409 S. 52nd Street, Tacoma, WA 98408. Reservations must be made by July 28, 2005. We will need to know how many individuals are in your family, as well as which meals you plan on eating with the group. This year we needed our own cook and purchase food, so we need an exact count for each meal. The meals available are Friday (dinner) from 5:30-7:00 p.m., breakfast, lunch and dinner on Saturday, and, for Sunday, breakfast and lunch. If you have questions, would like to let Corbin know the check is coming and you would like to reserve, or let her know that you will be obtaining a scholarship from PNWASF and will be coming, or just need additional information, call Corbin at (253)474-4865. WE WOULD LOVE TO SEE ALL WHO CAN MAKE IT THERE. IF FUNDS ARE AN ISSUE, DON'T WORRY. PNWASF CAN HELP!! PNWASF NORTHEND SUMMER PICNIC WHO'S INVITED: All Angelman families, including grandparents, other relatives, siblings, and friends! WHEN: Sunday, July 31st starting at Noon. WHERE: Rhonda and Jim Wreggleworth's house; 3613 Silvana-Terrace Road in Stanwood, WA (between Everett and Mt. Vernon). Please call to RSVP so we know how much food to buy. Their number is 360-652-8387. WHAT TO BRING: If your last name begins with A-M, bring a dessert item; if your last name begins with n-Z, bring a side dish. PNWASF will provide hamburgers, hotdogs, pop, and chips. There will be pony rides, a petting zoo, and swimming, so bring swimsuits and towels. Bring lawn chairs for your comfort, or at least a blanket to spread on the ground! This is always great fun! Come one, come all! copyright 2006. all rights reserved.^0^0^";
s[4] = "Pacific NW Angelman Syndrome Foundation^http://www.pnwasf.org/html/newsletters.htm^TODAY IS: SEARCH: Newsletters PNWASF publishes a newsletter for regional AS families. If you submit your name and address to ...^TODAY IS: SEARCH: Newsletters PNWASF publishes a newsletter for regional AS families. If you submit your name and address to us, we will put you on the mailing list for the newsletter and other regional information. Our newsletter includes updates on recent and upcoming activities, "Angel Tips" submitted by AS family members and other articles submitted by regional families that we think may be of interest to our members. copyright 2006. all rights reserved.^0^0^";
s[5] = "Pacific NW Angelman Syndrome Foundation^http://www.pnwasf.org/html/parent.htm^TODAY IS: SEARCH: Parent to Parent When a child is first diagnosed with AS, it is natural for the parents to be overwhelmed ...^TODAY IS: SEARCH: Parent to Parent When a child is first diagnosed with AS, it is natural for the parents to be overwhelmed with the news. You are not only interested in acquiring specific information about AS, but also may need emotional support to help you through the difficulty of adjusting to the knowledge that your child may never be normal. This adjustment period may last a number of years. Various events and family situations throughout the life of your AS child can also create a need for emotional support. Sometimes it is helpful to discuss your thoughts and feelings with others that have had the same experiences. We have a number of parents within our group, with AS children of varying ages and abilities, who are willing to be contacted by other AS families. In addition, three PNWASF directors have been specifically trained to talk to AS families who are in need of emotional support. We encourage you to contact them. They took time the time to attend the training because they wanted to help you - your call will not be an intrusion to them. Contact PNWASF at the phone number below or e-mail us and we will put you in touch with them. If you would like, contact the AS families in you state. All you have to do is open the pages below for each state listed in our region. Families are within each directory who may be be contacted for emotional and educational support on AS. > Oregon AS Families > Alaska AS Families > Washington AS Families copyright 2006. all rights reserved.^0^0^";
s[6] = "Pacific NW Angelman Syndrome Foundation^http://www.pnwasf.org/html/directory.htm^TODAY IS: SEARCH: Medical Directory DIRECTORY OF MEDICAL PROFESSIONALS Since AS is relatively unknown to many in the medical ...^TODAY IS: SEARCH: Medical Directory DIRECTORY OF MEDICAL PROFESSIONALS Since AS is relatively unknown to many in the medical community, PNWASF has compiled a list of medical websites that our regional families and their doctors, therapists, and care providers may use. Further, if you know of a doctor, therapist or care provider that you would recommend to other AS families, we would also like to know. We will list them on our website for all families to have access to their services. MEDICAL WEBSITESKitsap County Parents Coalition Contact A Family from the UK Who Named It Dictionary Developmental Disabilities Digest International Birth Defects Information Systems ASF in the U.S.-For Doctors ASF in the U.S.-Grants for Research Angelman Syndrome-A to Z Dictionary of Health, Medicine, & Human Life Sciences International Angelman Syndrome Foundation University of Washington For more information, contact Gretchen Glass, Supervisor, Center on Human Development and Disability, University of Washington, Seattle, Washington: 206-685-1242 . copyright 2006. all rights reserved.^0^0^";
s[7] = "Pacific NW Angelman Syndrome Foundation^http://www.pnwasf.org/html/gallery.htm^TODAY IS: SEARCH: Photo Gallery Send in pictures of your Angel - we want to see ALL of our Angels in our Photo Gallery! ...^TODAY IS: SEARCH: Photo Gallery Send in pictures of your Angel - we want to see ALL of our Angels in our Photo Gallery! However, please note that for safety purposes, only first names will be used when identifying persons in the photos posted on the web. Remember when selecting photos, this site will be visited by people who know your Angel, families who have recently received an AS diagnosis and families who are wondering whether they have an Angel. Pictures of Angels being themselves, reflecting Angel characteristics, showing your Angel at various ages and showing how your Angel interacts with the community would be excellent choices for the site. (PNWASF reserves the right to not post photos it considers inappropriate.) Within reason, there are no limits to the number of photos; however the more photos, the longer it will take visitors to pull up the web page. So start sorting through all those old photos! E-mail us and we will let you know where to send your pictures. We can scan non-digital photos. However, if you have them, digital pictures have a better image quality. Pictures can be lost in the mail so please don't send an irreplaceable, treasured photograph. You may want to take the photos to a copy center which has the capability of scanning the picture or have a friend scan them to a floppy disk and send the disk to us. ANGEL PHOTOS copyright 2006. all rights reserved.^0^0^";
s[8] = "Pacific NW Angelman Syndrome Foundation^http://www.pnwasf.org/html/directors.htm^TODAY IS: SEARCH: Board of Directors Following is the current PNWASF Directors and Officers. Because of the risks inherent ...^TODAY IS: SEARCH: Board of Directors Following is the current PNWASF Directors and Officers. Because of the risks inherent with addresses and phone numbers on the internet to which everyone has access, we have not provided the addresses and phone numbers, unless the Director has approved placing the information on our website. If you can demonstrate a legitimate reason for knowing this information for the director, contact us and we will provide it to you. David Platts: Director/ President 19003 S.E. 271st Street, Covington, WA 98042 Home: 253-639-1643 Work: 253-859-5300,ext. 23 Lori Tossey: Director/Vice President Jon Hegge: Director/Vice President Sherri Rein: Director/Treasurer Home: 253-638-6241 Jen Salvione: Director/Secretary Chris Watts: Director Gloria DeRosa: Director Jennifer Cyrus: Director PNWASF has an entirely volunteer board of directors. Officers are currently also directors on the board. No individual receives payment for their participation as a director or officer of PNWASF. The board currently consists of seven directors. The directors are elected to staggered three-year terms (two directors elected every year except for the third year when three directors are elected). Only dues paying members of PNWASF are eligible to vote in the elections of board members. Prior to the Annual Business Meeting, the board selects a nominating committee, to recommend individuals for the directorships up for re-election. PNWASF mails advance notice to its members and provides the opportunity for them to nominate additional persons. A person will only be put on the ballot if they agree to accept the nomination. The formal election is held at the Annual Business Meeting which is held in conjunction with the Annual Adult Retreat. PNWASF Officers are elected by the board of directors. If you are interested in participating on PNWASF's board of directors, please contact us. copyright 2006. all rights reserved.^0^0^";
s[9] = "404 Not Found^http://www.pnwasf.org/html/2005 PNWASF Adult Meeting.JPG^Not Found The requested URL /angelman/html/2005 PNWASF Adult Meeting.JPG was not found on this server. Apache/1.3.27 Server ...^Not Found The requested URL /angelman/html/2005 PNWASF Adult Meeting.JPG was not found on this server. Apache/1.3.27 Server at www.wildrivernet.com Port 80^0^0^";